Bladder

Why stepping away from it all is sometimes the only way to heal from within

As many people in the Interstitial Cystitis community know, I have been an active voice in the IC and Chronic Pelvic Pain awareness movement for almost 10 years. When I was first diagnosed in 2006, after years of unanswered questions, debilitating pain, and feeling completely isolated, I began a journey that would enable me to help thousands of chronic pelvic pain patients feel less alone, more educated, and stronger as they began the very difficult and lengthy healing process. For me, those years were the most gratifying, aggravating, heartbreaking, rewarding, and life changing times of my existence and the experience has forever shaped who I am as a chronic pain patient and as a woman today. Throughout the years I  happily put everything I had into furthering our cause because it truly made me feel good to do so, but as I got closer and closer to  my 30th birthday …

The best memes of 2014

This year for IC awareness month, I decided to implement a project/contest that would harness the every growing popularity of the “self made” meme. In the beginning, there was some confusion about how to go about making IC based memes for those not so social media/internet savvy folks but after some careful explaining and posting lots of Chuck Norris inspired memes for demonstration purposes, people were able to grasp the concept and run with it.   Here are the #ICawarenessmeme2014 submissions which I encourage you to share and re-post as many times as you see fit. All I ask is that you please continue to use the hashtag #ICawarenessmeme2014 so that we have a means of tracking its movement across the social media platforms. I want to take a moment to thank everyone who took the time to make the memes and also those who continued to share throughout the …

Tali Keteri’s Personal Writing & Critical Thinking Project for IC Awareness Month 2014

Last year I implemented a new kind of writing project that spanned the entire month of September as a way to help fellow ICers become more comfortable with talking about the many different emotions having a condition like IC can make us feel. I received such amazing feedback from those who chose to be involved and continued to hear from so many people who wanted to have another writing project in place for this year that I had to start planning a new form of exercise to keep us busy in 2014. After all, I could never willingly or intentionally let my fellow IC writers down! But, as much as I loved the daily thought topic project, I didn’t want to do the same thing all over again and fall into a routine and if I’m speaking honestly, as I usually do, there was also the fact that I didn’t …

Tali Keteri’s 2014 Interstitial Cystitis Awareness Month Social Media Meme Contest

   Tali Keteri’s Social Media Meme Contest -Supported by the IC-Network and the official IC Awareness Month campaign The above meme was created by yours truly!       Last year I had the privilege of running and contributing to the writing, poetry, and blogging portion of IC awareness month for the IC- Network. This year, I decided that since the majority of time in September of 2013 was spent helping fellow ICers become more comfortable when writing or talking about the intricacies and personal sensitive nature of this condition, we should use our new found confidence to tell our stories to those who have no idea what IC is or what it entails. We need to spend our time creating awareness tactics that interest those people who would normally have no interest at all in something that doesn’t directly affect them. What better way to do so than to …

Fashionably Late: I needed 14 bathroom breaks. Here’s to September. IC Awareness Month. 15 days late.

Ok. I know that I ranted a shit-ton about all of the projects I had planned for this years IC Awareness Month and never posted much of anything about anything. This is truly bothersome as I never, ever, EVER slack in September…especially when it comes to this even  But unfortunately, this year had some medical surprises in mind for me ( Not IC related- not even a little, believe it or not) that I couldn’t have predicted which knocked me off of my game completely. I have been less than useless for the past month and a half which has inevitably screwed up my time management. It  has been quite unfortunate. I feel as thought I’ve let many of you down and for that I apologize. For those who are wondering what is going on with me I promise I will touch base on all of the details later on in …

Mirror, mirror on the wall…

SEPTEMBER 19TH Your bladder crawls out of bed in the morning, makes its way to the bathroom to brush its teeth and relieve itself and catches a glimpse of itself in the mirror. What does it see? Is it male or female…is it broken and bruised? Does it have scars yet is still beautiful? Tell me what it sees. Below are the answers  I’ve received for IC Awareness Month daily topic # 19. My bladder is female. If she saw herself in the mirror she would be appalled. She is red, raw and covered with tiny pinprick cuts. She is hurting but any cream, any ointment will only make her feel more sore. She is clutching the sink, struggling even to keep looking at herself as she is so horrified by what she sees. She is disgusted with herself. She used to be helpful, to have a purpose. She has now, over the …

Daily topics for the final days of IC awareness month 2013

And now ladies and gentlemen, I present to you again….The daily topics for the final days of Interstitial Cystitis Awareness Month. September 22nd–  Who has stood by you the most through your struggle with IC? Write a thank you note to the person or people who have helped and supported you the most throughout this journey. September 23rd–  If you are an ICer who suffers with frequency, how many times have you peed today? It may sound ridiculous but it goes to show the non-Icers how stressful, time consuming, and redundant a task such as emptying one’s bladder can be. Most people couldn’t fathom having to “go” more than a few times a day let alone upwards of 20-30 or more. This is to give an idea of what it’s like.  How many times does it feel like you had to go?  Sometimes it feels like you spend an entire lifetime …

What people think of others who aren’t “healthy”…and what those who aren’t “healthy” think about all that.

SEPTEMBER 11TH  Tell me about who people think you are now that you have Interstitial Cystitis. Then tell me about who you know you are and some things about yourself that you may be in denial about concerning your condition. Example:  a synopsis of Tali- People thought I was a girl that wanted attention because my career wasn’t working how I had planned and because I was still single. I knew more than anything how much of a loyal, honest, and strong woman I was but was in denial about the fact that in my desperation to get people to believe me it could have come across to those who didn’t have any more knowledge than I did at the time that I was just generally desperate. I was in denial that my approach was all wrong. Below are the amazing answers  I’ve received for IC Awareness Month daily topic # 11.   …

Daily Topics for the 3rd week of IC Awareness Month

And now ladies and gentlemen, I present to you again….The daily topics for the 3rd week of Interstitial Cystitis Awareness Month. September 15th– Write a poem about pain. Use your adjectives!  Tell me about the mental effects, the strain on relationships. Bare your pained soul on this one guys.. No holding back. September 16th–  Most of the topics I have chosen have been to help us remind ourselves of the positive and not get lost in the pain. For this particular topic I want it to be as open and honest as possible.  Say exactly how you feel and say it all.  Write an open letter to the doctor or medical professional  (Assuming you had one of these asshats) that told you IC wasn’t real. Let him know what that did to you.   Please leave names out of it as this is more for a healing purpose as it …

Things We Are Still Thankful For Despite It all

SEPTEMBER 5th   EVERY TIME YOU GO TO PEE, THINK OF SOMETHING YOU ARE THANKFUL FOR INSTEAD OF THINKING ABOUT THE DISCOMFORT. MAKE A LIST,  HANG IT IN THE BATHROOM AND READ THAT INSTEAD OF FOCUSING ON THE PAIN.  Below are the amazing answers  I’ve received for IC Awareness Month daily topic # 5.   1. I am grateful that I have a safe, warm, lovely house to live in. I like the work I’ve done on it and the cosiness of it. I like the fact it’s a secure home for my two children. I love my front room as the winter nights draw in and I can light candles and be cosy. 2. We are hopefully getting a kitten; waiting to hear back on one possibility. It was sad we couldn’t do this a year ago but I think I can manage now. In my mind’s eye she will be …

Daily Topics for the 2nd week of IC Awareness Month

And now ladies and gentlemen, I present to you again….The daily topics for the 2nd week of Interstitial Cystitis Awareness Month. September 8th– Write a piece about the best memory you have after getting diagnosed with IC or after  the pain began. (I know that not everyone involved has been officially diagnosed!) The point of this exercise it to show that through all of the pain and suffering we, as humans with chronic conditions, are still quite capable of remembering the good things. Be descriptive! September 9th– Write a quick start ( summary)  instruction manual for your bladder. Think of it like the little pamphlets you get when you buy a new hair dryer or drill. It’s the one pager that explains how to turn it on and make sure you don’t kill yourself with it.  Have fun with this!!!!! For example:   Before using your Taliverse™ 85virgoBBB model for the …

What Dealing With The Pain of Interstitial Cystitis Has Taught Me About Myself

SEPTEMBER 4TH WHAT HAS IC TAUGHT YOU ABOUT YOURSELF? WHAT STRENGTHS OR CHARACTER ATTRIBUTES ARE NOW PROMINENT IN YOUR LIFE I combined some of the non-poetry answers from Day 2 into this one since it’s based on the same idea! Below are some of the amazing answers I’ve received thus far for IC Awareness Month daily topic #s 2 & 4 I have learnt that I cannot control everything in my life and that I have to relinquish control a lot in order to be calm. I am in a kind of a prison so I feel I have to just get through the days and make things as manageable as possible in these days. So I do not drink alcohol or drink coffee; I try to sleep well; I try to eat properly and not foods that will make my bladder angry. But it goes much deeper than this. I …

If Your Bladder Had A Theme Song, What Would It Be?

SEPTEMBER 3RD IF YOUR BLADDER HAD A THEME SONG, WHAT WOULD IT BE?  Below are some of the kick ass answers I’ve received thus far for IC Awareness Month daily topic # 3. Pain’ by three days grace Sex On Fire – Kings of Leon Walking on broken glass ann lenox I can’t fight this feeling any more. REO Speedwagon Haven’t got time for the pain, Carly Simon You lost that lovin’ Feelin’ Love Hurts- Nazareth  Hit the road jack My girl likes to party Wake me up before ya go go!!! Complicated- Avril Lavigne We’re not gonna take it – Twisted Sisters Theme from Rocky Welcome to my nightmare —Alice Cooper The Song that never ends! Blister in the Sun. Ring of fire She’s Cute When She Screams Sympathy for the Devil Great balls of fire “Give Me Novocaine” By Green Day Every rose has a thorn- Guns n Roses …

Interstitial Cystitis In Its Most Poetic Form

SEPTEMBER 2ND SUBMIT A POETRY OR SPOKEN WORD PIECE BASED ON SOMETHING POSITIVE IC HAS DONE FOR YOU Below are the chosen submitted poetry and spoken word piecesfor IC Awareness Month daily topic # 2. All other responses can be found under the original daily topic posts on the IC-Network FB page! If you emailed them to me and they didn’t fall into the poetry category I put them there so that the responses were still shared publicly!    We Are We are those who smile In hopes to lift another’s spirit And then there are those who fear it. There are those who don’t know behind it lies pain And that that person hopes to have the strength to do it again. And yet they are those who purposely choose rain. There are those whose dreams above the rest are to be cured And then there are those whose …

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