Chronic Pelvic Pain

Why stepping away from it all is sometimes the only way to heal from within

As many people in the Interstitial Cystitis community know, I have been an active voice in the IC and Chronic Pelvic Pain awareness movement for almost 10 years. When I was first diagnosed in 2006, after years of unanswered questions, debilitating pain, and feeling completely isolated, I began a journey that would enable me to help thousands of chronic pelvic pain patients feel less alone, more educated, and stronger as they began the very difficult and lengthy healing process. For me, those years were the most gratifying, aggravating, heartbreaking, rewarding, and life changing times of my existence and the experience has forever shaped who I am as a chronic pain patient and as a woman today. Throughout the years I  happily put everything I had into furthering our cause because it truly made me feel good to do so, but as I got closer and closer to  my 30th birthday …

The best memes of 2014

This year for IC awareness month, I decided to implement a project/contest that would harness the every growing popularity of the “self made” meme. In the beginning, there was some confusion about how to go about making IC based memes for those not so social media/internet savvy folks but after some careful explaining and posting lots of Chuck Norris inspired memes for demonstration purposes, people were able to grasp the concept and run with it.   Here are the #ICawarenessmeme2014 submissions which I encourage you to share and re-post as many times as you see fit. All I ask is that you please continue to use the hashtag #ICawarenessmeme2014 so that we have a means of tracking its movement across the social media platforms. I want to take a moment to thank everyone who took the time to make the memes and also those who continued to share throughout the …

Tali Keteri’s 2014 Interstitial Cystitis Awareness Month Social Media Meme Contest

   Tali Keteri’s Social Media Meme Contest -Supported by the IC-Network and the official IC Awareness Month campaign The above meme was created by yours truly!       Last year I had the privilege of running and contributing to the writing, poetry, and blogging portion of IC awareness month for the IC- Network. This year, I decided that since the majority of time in September of 2013 was spent helping fellow ICers become more comfortable when writing or talking about the intricacies and personal sensitive nature of this condition, we should use our new found confidence to tell our stories to those who have no idea what IC is or what it entails. We need to spend our time creating awareness tactics that interest those people who would normally have no interest at all in something that doesn’t directly affect them. What better way to do so than to …

Fashionably Late: I needed 14 bathroom breaks. Here’s to September. IC Awareness Month. 15 days late.

Ok. I know that I ranted a shit-ton about all of the projects I had planned for this years IC Awareness Month and never posted much of anything about anything. This is truly bothersome as I never, ever, EVER slack in September…especially when it comes to this even  But unfortunately, this year had some medical surprises in mind for me ( Not IC related- not even a little, believe it or not) that I couldn’t have predicted which knocked me off of my game completely. I have been less than useless for the past month and a half which has inevitably screwed up my time management. It  has been quite unfortunate. I feel as thought I’ve let many of you down and for that I apologize. For those who are wondering what is going on with me I promise I will touch base on all of the details later on in …

Why it’s ok to let go of the people who don’t support you.

      Someone asked me the other day if I missed the friends I lost during my journey with IC and other Chronic Pelvic Pain conditions. Almost immediately, the bitch in me legit laughed out loud  and in the most sarcastic tone I could muster asked “why,  should I?”   I guess it’s a legitimate question for those who don’t know me well enough to not waste the time asking a question like that in the first place or for those who really do believe in that whole “once a friend always a friend” thing. What it comes down to for me is simply this, ( and I am so bold as to say that most people would do much better if they followed the same path) if you have to let someone go because they cannot, will not, or dare not make an honest attempt to understand, support, …

Why yes, We’ll accept!

SEPTEMBER 18TH  You’ve been asked to give an acceptance speech. What are you accepting? A team of doctors and medical professionals whoa re going to get your health back on track. Tell them how much it means to you to have them working towards a better healthier you. Below are the answers  I’ve received for IC Awareness Month daily topic # 18.   –To my old urologist thank you for finally referring me to an ic specialist. To the ic specialist thank you for listening and being one of the few uros that truly are up to date and knowledgable about ic. Thank you for not being condescending as I tell you of my ideas for treatment. Thank you for seeing how much pain I’m in. Thank you to my previous urologists’ pa who was more educated and up to date with ic than he was. Last but not least thank you to …

How nurses and doctors can single-handedly destroy those who are trying to find medical answers.

SEPTEMBER 16TH Most of the topics I have chosen have been to help us remind ourselves of the positive and not get completely lost in the pain. For this particular topic I want it to be as open and honest as possible. Say exactly how you feel and say it all. Write an open letter to the doctor or medical professional that told you IC wasn’t real or that you should just live with it. Let him/her know what that caused emotionally for you. Talk about the effects something like that has on a chronic pain patient. My only suggestion is to please leave names out of it or use something like Dear Doctor “doesn’t have a clue” or “Nurse Ratchet” as this is more for a healing purpose as it is for name calling. – Why Hellooooooooooooooo Nurse Ratchet.  What? I couldn’t resist… Below are the answers  I’ve received …

Introduce yourself to your pain & remind it that you’re still mostly in charge. Most of the time.

I spent the first days of my newly married life completely stressed the shit out about where we were going to live, what we were going to do for money until Derek’s GI bill kicked in and I started my job, and when I could start acting like a normal “no longer planning a wedding” human being again. It was the happiest first few days of my married life and the most stressful days since the morning of the wedding. Add that with a combination of no sleep and it creates a recipe for pelvic disaster.  Sidenote: prepping for a wedding for 1+ yrs to have it over in 1 day leaves you completely lost and baffled at the end of it all. Trying to rewind back to what you were before the planning started is like trying to put out a fire with a teaspoon and a shot glass …

Interstitial Cystitis Awareness Month

Interstitial Cystitis Awareness Month IC awareness month is fast approaching….what are you going to do to get involved and spread the word?   Please take a moment to check out all of the different committees that are being run this year by myself and an assortment of other IC combatants. We need help with writing, social media efforts, proclamations, poster competitions, blogging, poetry, political lobbying, and media relations. Reach out if you’re interested in getting involved. If you’re one for writing/poetry/blogging  you can contact yours truly! I will be posting more about my plans for the writing/poetry/blogging portion of this years IC awareness month in the next few days.

R.I.P work ethic….our generation no longer cares that you’ve died nor do they want to revive you.

I know I speak of no secret when I say that the health care system fails many patients looking to it for assistance  on a daily basis. It can be as something as little as a busted lip, broken foot, or a terrible cough, or it can be something as serious as chest pains, chronic pain conditions, or cancer. I have found in my 20+ years of spending time in numerous health care venues that it typically doesn’t matter what ailment you are there for because the amount of care you get is based completely on who you are, who you know, which doctor actually bothered to learn about total body care even if they were  “just going to be a podiatrist”, and how good you are at playing the “I deserve to be your patient and be treated as one” game which I’m pretty sure that all CPP patients …

Interstitial Cystitis and Pelvic Floor Dysfunction explained in real people terms.

I’ve been needing (yes needing) to write a piece on this topic for quite a long time. Usually, when I am so inclined to spout my thoughts and feelings on an issue I just sit down and do so with no questions asked and absolutely no procrastinating. Unfortunately, this subject deserves pure thought, passion, and patience (and we all know that patience is not something that comes in abundance in the Taliverse). This is something that has plagued my thought process for the past 7 years of my life and continues to do so on a daily basis. It is not an easy subject to handle but I plan to do so in a way that will give you no choice but to think about it from my point of view. I have always had a knack for making people see things my way, if only until the end of …

Annoyance is quickly approaching…

Hey…looky here. September is fast approaching.Which also means genuine annoyance caused by none other than yours truly is quickly approaching as well. What does this mean you ask? SEPTEMBER IS IC AWARENESS MONTH. And this, my friends , can only mean two things: My mouth will not be quiet and my fingers will not be still. So, with all of that being said… This is my official warning….a disclaimer if you will. The next 6 weeks of your lives are going to be spammed with talk of bladder stuff and not just by me but by many other men and women who have douchebaggish hellions with no manners for bladders.  It will be graphic. It will be gross. It will be more information about me than you all care to know. It will seem unnecessary to those of you who don’t believe this IC thing exists. If you are one of those …

Fall Down, Go Boom

I realize that everyone will be wondering what happened with me and Boom.  He and I ended our relationship in July, but are still great friends. Here were my thoughts the night after we parted ways…. It’s funny how you envision things a certain way when you look towards your future with someone. You weigh the good and the bad. The pros and the cons, and you make decisions based off of your emotional involvement, gut feelings, intelligence, and wisdom on the subject at hand. You may start out thinking that you can persevere through any hardships that come your way, ready for any challenge, trial, and tribulation and you may believe this with every fiber of your being. But when does it become too much? When does it become more of a settlement and business arrangement as opposed to something that you’re both in for advancement within yourselves and with each …

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